At Home Caregiver Resources

At Home Caregiver Support

Stepping into the role of an at home caregiver can be be a difficult transition for many people. According to the Family Caregiver Alliance, 65% of older persons with long-term care needs rely exclusively on family and friends to provide assistance.Women play the largest role in this type of care.

Unfortunately, many unpaid at home caregivers lack proper training, and typically are forced to learn by trial and error. If you’re new to caregiving, we hope you can use this page to pick up some valuable tips and advice to help make your life a little less stressful.

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Caregiver Resources

General Caregiver Resources

Federal Older Americans Act – Older American Act and Aging Network has developed a comprehensive system of home and community-based services. Members of this network help older individuals to maintain their health and independence at home.

State by state resource intends to help you locate government, non-profit, and private programs in your area. It includes services for family caregivers and resources for older adults or those living with disabilities at home or in a residential facility.

National Family Caregiver Association helps educate, support, and empower more that 65 million people who care for others living with a chronic illness, disability or frailties of old age.

Eldercare Locator – Connects caregivers to local services and resources for older adults and adults with disabilities across the United States.

National Alliance for Caregiving – a non-profit alliance of national Organizations focusing on issues of family caregiving.

ARCH Respite Network – Find programs and services that allow caregivers to get a break from caring for a loved one.

Medicare Caregiver – Get resources, stories, and newsletters about taking care of someone with Medicare. If you’re one of the nearly 66 million Americans caring for an aging, seriously ill, or disabled family member or friend, we’re here to help make your life a little easier.

12 Resources Every Caregiver Should Know – Handy list of support, services, and tips for caregivers.

AARP’s Caregiving Resource Center – Information, tools and tips for caregivers

Medicaid.gov – Home and community-based services (HCBS) provide opportunities for Medicaid beneficiaries to receive services in their home or community. Find Your State Waivers Program
Care Transitions

 

Transitioning Care Support

As a patient or family caregiver, there are several steps you can take to help you be a more informed and competent member of the care team during the transition back home after hospitalization.

Care Transitions – Discharge Planner helps patients and family caregivers know what questions to ask prior to discharge. The tool encourages you to speak up about your anticipated needs.

Care Transitions Personal Health Record – Organize relevant health information including medications, health conditions, and questions for your doctor. Keep updated and with you on medical appointments.

For Family Caregivers – What Do I Need Going Home from a Hospital or Rehab?

Guidance For Family Caregivers on HIPAA: Questions and Answers for Family Caregivers

Doctor Visits – This guide provides practical tips to help patients and family caregivers coordinate agendas before an appointment

The Emergency Room (ER) experience can be overwhelming and confusing. This guide delivers steps to help you prepare for and avoid, ER visits.

 

Alzheimer’s Disease and Dementia Resources

Alzheimer’s Association – Information and support for people with Alzheimer’s disease and their caregivers. Operates a 24/7 helpline and care navigator tools.

Alzheimers.gov – The government’s free information resource about Alzheimer’s disease and related dementias.

DementiaToday posts scientific news and professional views on Alzheimer’s disease and other dementias from the global research community. It promotes better health care through education, provides support to caregivers and loved ones who live with these diseases every day.

Alz.org – 2015 Alzheimer’s Disease Facts and Figures – a Comprehensive Report on the Disease

101 Fun Things to Do with Loved One Living with Alzheimer’s Disease – As we age, we worry about becoming forgetful. We jump to conclude that it’s Alzheimer’s! Let scientists and their studies guide you on memory concerns and learn which kinds are serious.

National Institute on Aging – Forgetfulness: Knowing When to Ask for Help

BrightFocus Foundation – Exercise your mind and have fun with the following memory games!

Medicare.gov – Find and Compare: Doctors, Nursing Homes, Plans, Hospitals, Medical Supplies, and Home Health Care Services

Veterans Administration – Support and services for families caring for veterans. Maintains a Veteran caregiver support line.

 

Resources for Working Family Caregivers

The majority of family caregivers are Millennials, females over 49, and a growing number of men. Giving care forces an individual to compromise employment, deal with heavier stress than expected, and jeopardize your financial well-being. You trade in job productivity with complex care tasks, such as administering oral medicines or injections, wound care, or operating medical equipment.

In order to survive the caregiving pressures, learn to navigate and apply long-term care support and services. Reach out and ask for help from local resources:

 

Find Affordable Services

Meals on Wheels  – There are more than 5,000 independently-run local programs. Volunteers help run the program and costs vary on the location branch.

Local senior centers  – Many towns and cities have a center for seniors. Meals are offered to go or in person and prices differ in cities.

Salvation Army  – Some locations provide on-site and meal delivery for the elderly.

Visiting Nurses Associations  – Local associations deliver fresh and frozen meals to residents for a low cost.

Area Agency on Aging – The Area Agency on Aging can help you find low-cost personal care services and transportation.

Non-profits and local agencies make it possible for seniors to live at home through low-budget services like meal delivery and transportation. Do a local search online for family service agency.

Paratransit Services  Provides cars, vans, or buses to collect and drop off individuals at their homes.

  • Veteran Transit Services
  • Senior transport and rideshare services like Uber delivers low-cost transportation services to senior riders.

 

Senior Care Expert Help

There are professionals and programs that assist caregivers to locate help.

Understand chronic conditions

Home safety for older adults

Find local in-home care agencies

 

Monitor a Loved One’s Well-being and Safety

CaringBridge.org

Lots of Helping Hands

WebMD Health Manager

HealthVault